Jenny, from Coombe Vale, Saltdean, has osteoarthritis and coronary heart disease and before having a stent fitted a couple years ago she had a 90 per cent blockage in her arteries.
Although her condition has improved after having the procedure, it still affects her day-to-day life.
She said: “I can’t go up hills very well and I get angina if I’m under any kind of stress, physical or mental.”.
Can’t possibly work, being so disabled.
Daughter Charlie has global developmental delay (GDD), severe learning disabilities and two rare genetic disorders.
Jenny said: “She can’t read or write, she’ll never be able to lead an independent life.”
Can’t possibly work, being so disabled and a full time carer.
Jenny is now the chairwoman and spearhead of the committee which organises Disability Pride.
She said: “I work 14 hours a day, seven days a week, and I do it for nothing – I don’t get paid or anything, so it’s really hard work, but it’s worth it.
“It’s given me purpose and it’s great to give back to the community, to give back to society.
“I think it’s a good idea for people to come along and see that disabled people are just people and there shouldn’t be any disability discrimination.
“We just want everybody to come along and celebrate – it’s not just for disabled people, we want everyone to come along and see us as we are.”